For our friend Cassie and her awesome son Nate! Help Cure STXBP1 Shock Talk With David and Mary Shockley 7:47 3 years ago 124 Скачать Далее
Raquel and Keyarah's STXBP1 Story: Defying the Odds Rocky's Modern Life 5:21 1 year ago 1 059 Скачать Далее
FLOURISH: A multifaceted fundraising endeavor to wipe out the rare disease, STXBP1 disorders FLOURISH 5:31 1 year ago 2 640 Скачать Далее
trystin is 5 years old and has a condition called stxbp1 #stxbp1 Judy Garton 0:57 1 year ago 154 Скачать Далее
Isaac’s Story Polymicrogyria and Infantile Spasms All Things Isaac 16:00 3 years ago 4 675 Скачать Далее